Showing posts with label legal threats. Show all posts
Showing posts with label legal threats. Show all posts

29 Jul 2009

Simon Singh's chiropractic article: “Beware the spinal trap”

Many bloggers today are reprinting a slightly altered version of the article on chiropractic Simon Singh wrote for The Guardian. Unlike scientists who defend their claims by discussion in the scientific media, the British Chiropractic Association (BCA) used the method so beloved of practitioners of non evidence based medicine, and sued Simon Singh for libel. There's nothing the alties like so much as a spot of legal chill.

free debate

Like all forms of woo, chiropractic is said to cure/treat autism. Quentin Wilson says it cured his autistic son and he used to be on the telly talking about cars so he should know. His anecdote is used by this UK chiropractic clinic as some sort of evidence of effectiveness.

Chiropractic is one type of woo that has before now, seemed to avoid close inspection from the DCs of the world who excel in exposing pseudoscience, as it seemed more scientific, or at least, sciencey. But the decision of the BCA to apply legal muscle to silence reasonable critique has only drawn lots of people to focus attention on their practices and positions. They are not enjoying the scrutiny.

Simon Singh wrote a decent, informative article and it'd do no harm for more people to read it.
If you agree that the law has no place in scientific disputes, please add your name to the statement.

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Beware the spinal trap

Some practitioners claim it is a cure-all, but the research suggests chiropractic therapy has mixed results - and can even be lethal, says Simon Singh.

You might be surprised to know that the founder of chiropractic therapy, Daniel David Palmer, wrote that '99% of all diseases are caused by displaced vertebrae'. In the 1860s, Palmer began to develop his theory that the spine was involved in almost every illness because the spinal cord connects the brain to the rest of the body. Therefore any misalignment could cause a problem in distant parts of the body.

In fact, Palmer's first chiropractic intervention supposedly cured a man who had been profoundly deaf for 17 years. His second treatment was equally strange, because he claimed that he treated a patient with heart trouble by correcting a displaced vertebra.

You might think that modern chiropractors restrict themselves to treating back problems, but in fact some still possess quite wacky ideas. The fundamentalists argue that they can cure anything, including helping treat children with colic, sleeping and feeding problems, frequent ear infections, asthma and prolonged crying - even though there is not a jot of evidence.

I can confidently label these assertions as utter nonsense because I have co-authored a book about alternative medicine with the world's first professor of complementary medicine, Edzard Ernst. He learned chiropractic techniques himself and used them as a doctor. This is when he began to see the need for some critical evaluation. Among other projects, he examined the evidence from 70 trials exploring the benefits of chiropractic therapy in conditions unrelated to the back. He found no evidence to suggest that chiropractors could treat any such conditions.

But what about chiropractic in the context of treating back problems? Manipulating the spine can cure some problems, but results are mixed. To be fair, conventional approaches, such as physiotherapy, also struggle to treat back problems with any consistency. Nevertheless, conventional therapy is still preferable because of the serious dangers associated with chiropractic.

In 2001, a systematic review of five studies revealed that roughly half of all chiropractic patients experience temporary adverse effects, such as pain, numbness, stiffness, dizziness and headaches. These are relatively minor effects, but the frequency is very high, and this has to be weighed against the limited benefit offered by chiropractors.

More worryingly, the hallmark technique of the chiropractor, known as high-velocity, low-amplitude thrust, carries much more significant risks. This involves pushing joints beyond their natural range of motion by applying a short, sharp force. Although this is a safe procedure for most patients, others can suffer dislocations and fractures.

Worse still, manipulation of the neck can damage the vertebral arteries, which supply blood to the brain. So-called vertebral dissection can ultimately cut off the blood supply, which in turn can lead to a stroke and even death. Because there is usually a delay between the vertebral dissection and the blockage of blood to the brain, the link between chiropractic and strokes went unnoticed for many years. Recently, however, it has been possible to identify cases where spinal manipulation has certainly been the cause of vertebral dissection.

Laurie Mathiason was a 20-year-old Canadian waitress who visited a chiropractor 21 times between 1997 and 1998 to relieve her low-back pain. On her penultimate visit she complained of stiffness in her neck. That evening she began dropping plates at the restaurant, so she returned to the chiropractor. As the chiropractor manipulated her neck, Mathiason began to cry, her eyes started to roll, she foamed at the mouth and her body began to convulse. She was rushed to hospital, slipped into a coma and died three days later. At the inquest, the coroner declared: 'Laurie died of a ruptured vertebral artery, which occurred in association with a chiropractic manipulation of the neck.'

This case is not unique. In Canada alone there have been several other women who have died after receiving chiropractic therapy, and Edzard Ernst has identified about 700 cases of serious complications among the medical literature. This should be a major concern for health officials, particularly as under-reporting will mean that the actual number of cases is much higher. If spinal manipulation were a drug with such serious adverse effects and so little demonstrable benefit, then it would almost certainly have been taken off the market.

Simon Singh is a science writer in London and the co-author, with Edzard Ernst, of Trick or Treatment? Alternative Medicine on Trial. This is an edited version of an article published in The Guardian for which Singh is being personally sued for libel by the British Chiropractic Association.

13 Feb 2009

DUP Numpties Dragging us Back to the Stone Age

SO we've already had young Sammy Wilson, Minster for the Environment in the parliament of this peculiar and fought over minuscule corner of our planet, a climate change denialist, block a UK government commissioned TV ad advising people how to reduce consumption and CO2 emissions from their homes.
There's a Royal Society's guide he'd be well advised to read.

Last year the DUP MP Iris Robinson promoted her own brand of bigotry to the world.

Today we hear again from Mervyn Storey, fellow DUP member who not only believes that this whole universe is about 6000 years old, but that it was all put together in just 6 days.

Now the man can believe what he wants as long as he doesn't interfere with my or my children's right to enjoy life free from his fairy tales. But here's the problem; little Mervyn (look at his wee Bash Street Kids face, the tyke!) is threatening the Ulster Museum with legal action if it doesn't represent his fabulous tale alongside its planned exhibition on evolution when it reopens later this year after undergoing a major refurbishment. Mervyn thinks that because he's not the only person living here who believes his astonishing 6 day tale, that he can use equality legislation to force the museum to show nonsense alongside evidence based information! Yes, I know... Worse still, this man chairs the NI education committee. Once again, I'm glad to home-educate.

Walter the Softy Mervyn told the Guardian,
"In the past, when I have written to the museum about necessity to show the public an alternative to Darwin's theory (and let's stress it is still only a theory), they have been quite dismissive."
Argh! He used the "only a theory" thing! From Understanding Evolution, a site Mervyn would learn much from,
"Scientific theories are explanations that are based on lines of evidence, enable valid predictions, and have been tested in many ways. In contrast, there is also a popular definition of theory — a "guess" or "hunch." These conflicting definitions often cause unnecessary confusion about evolution."
In the Guardian article Mervyn attempts to smear Charles Darwin with accusations of racism, when others have recently shown that he was in part motivated by anti-slavery principles,
"In this politically correct society we live in today, if Darwin expressed those views about other peoples of the world now he would not be put on any pedestal."

Asked if humans evolved from monkeys, Storey said: "Certainly not, and there are plenty of other people in this society who don't believe it either."

The chairman of the education committee at the Northern Ireland Assembly said: "I am not against the museum or anywhere else promoting Darwin's theory, but I think it would be in the public's interest to give them an alternative theory as well.

"We are currently because of the anniversary being bombarded with Darwin's theory but there are others in the scientific world who question that thesis and their voices should be heard in publicly funded institutions like the museum."

Darwin may have dispassionately dismissed some peoples as savages in one of his books, which wrong as that is, must be seen in light of the prevailing attitudes of his time and class.

Moreover, if Mervyn reckons only those with politically correct views by today's standards should be on pedestals, he should hire a truck to knock down most of the public statues in this province...and sack many of his party colleagues.

I am looking forward to the Ulster Museum's reopening. It was a fusty but fun place to visit before, and I'm sure after it's make-over, it will be even better. No doubt we will visit often as part of our learning voyage, but I don't want to have to negotiate frankly incorrect exhibitions in a place of learning and science.

Praise be then that the museum has pledged to do the right thing and will,

"house galleries and exhibitions of international significance interpreted in line with excellent scholarship and research. Within the permanent science galleries we will explain the conventional scientific theories internationally accepted by scholars and scientists to describe life on earth from the earliest evidence of fossils. This is consistent with approaches taken by museums of renown across the world." [emphasis mine.]
Boo to backwards pulling politicians, hooray for well run museums.

11 Feb 2009

Who wants to win "Autism's False Prophets"?


This week, people around the world learned of Jeni Barnett's ignorance and how her radio station, LBC, attempted to stifle debate with legal threats. As explained so elegantly on Autism News Beat, Jeni is a,
"British actress who feels obligated to share what she knows about vaccines and measles. But since she knows so little, Barnet was compelled to fill the rest of her three hour time slot with anti-vaccine talking points, addle-pated weltanschauung, and other assorted brain farts."
From the wonderful worlds of autism and vaccine quackery, and sadly the two are inextricably linked, we also learned this week of Andrew Wakefield's incompetence/falsification of data (the only possible explanations for what happened).

In a bid to restore balance to the universe, I shall give away a copy of Paul Offit's wonderful book, "Autism's False Prophets."

I must get around to doing a proper review soon, but for now, although I wish he'd looked at the behaviorist's claims with the same rationalism as those of the vaccine causation cranks, and though I oppose the harsh words on autism of one contributor, it is a fine book. It details the history of the false association of autism with vaccines, just part of the anti-science story exemplified by Jeni Barnett and LBC. Clearly, liar/extreme incompetent anti-scientist Andrew Wakefield has a prominent role in the tale, which is highly readable, a bit of a page turner even. If you have children and are concerned about having them vaccinated, read this, and realise that the whole sorry mess was manufactured out of nothing. The various vested interests are laid out in full. Offit's is open about his own role as a specialist in infectious diseases and co-inventor of a flu vaccine.

So if you want a copy, no matter where in the world you are, just leave a comment below and tell me who is your autism hero and why, and who is your autism anti-hero and why. I'll have one of the children pick a name at random and then I'll get the book sent out.

To get you started, here are a few names, a mixture of heroes and zeroes, (hotties and notties...sorry):

Wakefield, Leitch, O'Leary, Offit, Shattock, Shattuck, Lovaas, Orac, Dawson, Stanton, McCarthy, Leary, Geier, Seidel, Baron-Cohen, Rimland and so on...

Get at it. The winner will be chosen on February 25.

8 Feb 2009

Wakefield falsified data to link MMR to autism

One of the major sources of suffering for autistic people and their parents over the past 10 years, has been the continued association in the media and in the public's consciousness between the MMR vaccine and autism. Andrew Wakefield was a gut surgeon, a maverick doctor with a hunch and in the pay of lawyers. He held the patent on a rival measles vaccine and stood to benefit if somehow he could sully the MMR vaccine approved of by the health department and have it replaced with his own measles vaccine. For a while he tried to link the MMR with Crohn's disease to no avail, so he must have been delighted when he heard whisperings of parents blaming the MMR for causing their children's autism. He managed to recruit a bunch of these parents, most of whom were suing the government for causing their children's neurological condition, and though he wasn't a paediatrician, he got a mate to scope their guts, had the samples analysed at a badly run lab and concocted the results he needed to make out there was a strong association.

Yes, it seems he falsified the data.

Brian Deer writes on today's Sunday Times about the many ways in which Wakefield's Lancet paper of 1998, the article that set this whole confusing and damaging mess in motion, changed many important details about the 12 children studied. 11 of them were described as having a brand new condition invented by the authors, "regressive autism."

According to Deer's investigation:
"Wakefield and his team reporting that Child One’s parents said “behavioural symptoms” started “one week” after he received the MMR.

The boy’s medical records reveal a subtly different story, one familiar to mothers and fathers of autistic children. At the age of 9½ months, 10 weeks before his jab, his mother had become worried that he did not hear properly: the classic first symptom presented by sufferers of autism."

(Dear Brian Deer, your work here is excellent, but please, no more of the "sufferers of autism" thing.)

Another child was written about in the Lancet paper as developing "regressive autism" two weeks after his jab, but Deer explains that:
"...this child’s medical records, backed by numerous specialist assessments, said his problems began three to five months later."
So Wakefield blithely ignored the truth when it didn't support his theory. There is much more, the only girl in Wakefield's cohort was described in the Lancet as, "having suffered a brain injury “two weeks” after MMR" but "she had been seen by local specialists, and her GP told the Royal Free of “significant concerns about her development some months before she had her MMR”."

There is more:
"Child Six, aged 5, and Child Seven, aged 3, were said to have been diagnosed with regressive autism, with an onset of symptoms “one week” and “24 hours” after the jab respectively.

But medical records show that neither boy was “previously normal”, as the Lancet article described all the children, and that both had already been hospitalised with brain problems before their MMR."

The MMR debacle, started by one arrogant, dishonest doctor with scant regard for scientific accuracy or even for ethics in how he treated the children, has been extrapolated by the media with years of inaccurate, awful reporting on vaccines and autism. Even last week, one radio presenter, former actress Jeni Barnett, spewed her ignorant and rather deranged views on vaccination over the airways for an hour. She of course spoke of her notion that vaccines made her child autistic.

Dr Ben Goldacre played a long excert from her LBC show so people could hear for themselves just how befuddled and mistaken the woman was, just how it is that media personalities fuel the lies that have resulted in the low uptake of a life saving vaccine, the continued misrepresentation of autism as something that happens to previously "normal" children and the high rise in measles cases. The show is now available on Wiki Leaks and there are loads more links on Holford Watch.

Her response, send the lawyers after him. Typically, this has only served to spread the recognition of her stupidity world wide as transcripts of the show pop up all over the blogosphere. Hurrah for the internet.

But enough!

There have been so very many biomedical and epidemiological studies done into that supposed association. It just doesn't exist. It is a fairytale.

The time and money spent attempting to reassure the public of the MMR's safety could have been used to do make actual progress in health and science. If the smallest fraction of that effort had focused instead on helping autistic people live and thrive, the benefits would be immense.

We are fed up hearing our children described as toxic and poisoned. Surely even Wakefield's most ardent supporters, those who wave placards outside the GMC when he turns up for his disciplinary hearings and who gaze adoringly at him as if they're 10 and he's Zac Efron, will rethink and realise he's no hero.

7 Apr 2008

Kathleen Subpoenaed - Video

I am gratified to see the extent of the outcry on Kathleen's behalf. Clifford Shoemaker must rue the day he decided to take a shot at that particular lady. There are few bloggers who are as revered and respected and who are capable of enlisting so much support. However, this incident has demonstrated that even the lesser bloggers could count on the support of their blogging peers if they came under this kind of unwarranted attack. The principle still stands.

The follow video summarises the issues.



Edited 8th April to add another a video by Autism Diva:



See another video by S.L. at Stop. Think. Autism.

And finally, from dkmnow, there's this;

4 Apr 2008

Neurodiversity Blogger Unfairly Subpoenaed

Kathleen Seidel, owner of the Neurodiversity website and blog, has been served with a subpoena in what appears to be a craven attempt at intimidation.

The website is one of the best, most extensive online resources on autism and more general disability issues. The blog provides a masterclass on what the very best bloggers can achieve. I choose Kathleen for the Thinking Blogger Award last year, and as I wrote then, "She is clever, dogged, unfailingly polite, thorough, fair, compassionate, dedicated and whatever the highest award available to bloggers is, she should get one. She writes about autistic advocacy and anti-scientific theories of autism causation and 'treatment'."

Kathleen Seidel has blogged about the activities of the Rev. Lisa Sykes and her husband Seth Sykes, who continue to claim, despite all the evidence to the contrary, that their son's autism was caused by mercury poisoning via vaccines. Sykes is suing a several pharmaceutical companies, alleging her son was damaged by their vaccines. Among the lawyers representing Sykes, is Clifford Shoemaker, about whose earning from vaccine litigation Kathleen wrote just before she was served with a subpoena, (issued by Shoemaker) to produce extensive, personal documents and records for the Sykes' suit.

Kathleen has written (what looks to my ignorant-of-law eyes) a great reply to quash the subpoena, detailing the many reasons against it's validity. Among these she writes;

I am not a party to Sykes v. Bayer, and have had no personal acquaintance or contact with any of the parties to it.
...
http://www.neurodiversity.com is not a legal entity, an organization or a business; rather, it is an Internet domain name that I own. My website is a one-woman labor of love, creativity, conviction and conscience.
...
I have not otherwise been paid by any person or organization for developing or maintaining the website, for writing, or for my political advocacy or charitable work.
...
Even if the subpoena were not unconstitutional, illegal and barred by the journalist’s privilege, it is excessively intrusive in its terms. Plaintiffs and their counsel seek not only to rummage through records that they suspect pertain to themselves, but also through my family’s bank records, tax returns, autism-related medical and educational records, and every communication concerning all of the issues to which I have devoted my attention and energy in recent years. I have a reasonable expectation of privacy with respect to this material. It would be wholly inappropriate for the court to compel me, a nonparty to this civil action, to subject myself, my family, friends and acquaintances to the hostile scrutiny of plaintiffs in order to enable them to argue some point that would not even help to prove their case.
...
WHEREFORE, Kathleen Seidel prays her motion to quash this unconstitutional, unreasonable, irrelevant, excessive, invasive, burdensome, frivolous, and clearly retaliatory subpoena be ALLOWED.

I have glanced over the subpoena, and there is no indication that Kathleen is being accused of having done or written anything in any way illegal. It does ask for all correspondence between Kathleen and “religious groups (Muslim or otherwise), or individuals with religious affiliations,” as well as most of the people whose blogs are on her blogroll, including this one! What purpose could all this possibly serve? And what on earth is that bit about religious groups supposed to mean?!

I find this action against someone who has always been so fair and scrupulous in her activities to be reprehensible. I also think, like every previous attempt to persecute a blogger without just cause, this will go badly against Sykes and Shoemaker. Haven't they heard of the Streisand effect? Why would they want a judge (or whomever is responsible for deciding on these matters) to read all of Kathleen's work which shows their claim for what it truly is. She also details Sykes' involvement in the Griers IRB which approved their "research" on chemical castration agent, Lupron, as one of the cornucopia of supposed treatments foisted on autistic children, among them, the son of Rev. Sykes.

As someone in the comments section of Kathleen's blog wrote, as far as this goes, and in the tone of Kubrick's famous film, when someone goes picking on one of our own, I am Kathleen.

All these others are Kathleen too ;-) Let me know if I've missed anyone out.
  1. (There are comprehensive lists at I Speak of Dreams and Holford Watch too; they've most likely got links I missed.)
  2. Autism cranks attempt to intimidate blogger by subpoena from Pure Pedantry
  3. Autism cranks going after bloggers from Denialism Blog
  4. Evidence of Slime from GreyMatter/White Matter
  5. Kathleen Seidel Slapped With unconstitutional, illegal, barred by the journalist’s privilege, and needlessly invasive subpoena from I Speak of Dreams
  6. Vaccine lawyer subpoenas Kathleen Seidel from Overlawyered
  7. Clifford J. Shoemaker and Lisa Sykes: Putrid Lawyering from Whose Planet is it Anyway
  8. Kathleen Seidel's Blog: Influence Means You Get Subpoened
  9. and Olson's Trumpet - Blogosphere Unites Behind Kathleen Seidel from Law and More
  10. Rediculous from Autista
  11. Attempted suppression of Seidel from Pharyngula
  12. More legal thuggery, this time against Neurodiversity.com from Respectful Insolence
  13. An open letter to David Kirby and Dan Olmsted about the Kathleen Seidel subpoena from Respectful Insolence
  14. We are all Kathleen Seidel from Letting Off Steam
  15. Sandy: Blogger on autism hit with subpoena ** from Jack's Newswatch
  16. Blogger on autism hit with subpoena ** from Crux of the Matter
  17. Trusted MD
  18. Another day, another gasket from Poohflingers Anonymous
  19. I am Kathleen from Autism Street
  20. Kathleen Seidel Has Received a Sub-Poena: Streisand, Spartacus, Shoemaker, They Start with S and End the Same Way from Holford Watch
  21. JREF discussion
  22. Anti-Vaccination Parents stoop to new lows from Rev. BigDumbChimp
  23. Aspies for Freedom discussion
  24. Vaccine-Litigant Thuggery: Subpoenaed For Blogging from Popehat
  25. We are Kathleen too from Runman
  26. Kathleen Seidel: "Subpoenaed" from Homo Autistic
  27. Blogger Troubles - SLAPP from Left in Alabama
  28. Kathleen Slapped-Blogs Slap Back from Club166
  29. All for one and one for all from Normal is Overated
  30. Shoemaker’s Witch-Hunt: An Open Letter from dkmnow
  31. How to Treat a Bully from One Dad's Opinion
  32. Rallying the Blogosphere Again from Mythusmage Opines
  33. The Plane! The Plane! from Dr.J's House Calls
  34. Blogger ensared in hotly contested autism-vaccine lawsuit from Strategic Thinking and Execution
  35. Welcome to the "I am Kathleen" Scavenger Hunt from Asperger Square 8
  36. Neurodiversity blogger subpoenaed in "vaccine-autism link" lawsuit from Women's Bioethics Blog
  37. We are Kathleen from The Rettdevil's Rants
  38. Quash this unconstitutional, unreasonable, irrelevant, excessive, invasive, burdensome, frivolous, and clearly retaliatory subpoena from Swiftspeech!
  39. Abuse of Process: Blogger, Unrelated to Action, Hit With Subpoena from New York Personal Injury Law Blog
  40. Neurodiversity blog intimidated by lawyers from Bad Science Forum
  41. Clifford Shoemaker, What a Dick, Plus Other Views
  42. The Mozlems Want You to Have Autistic Babies from Victoria's Corner
  43. Autism-Vaccine / Neurodiversity War Getting UGLY from Axinar
  44. Blogger ensnared in hotly contested autism-vaccinne lawsuit from Ars Technica
  45. Can I Play Sykes Google Hit Too? from Liv's Journey
  46. Shoemaker’s subpoena is a load of cobblers from Action for Autism
  47. Open Letter to Kirby and Olmstead from Action for Autism
  48. Bloggers On The Seidel Subpoena from Autism Street
  49. Autism Lawsuit from Galactic Poolhall
  50. Seidel subpoena a threat to citizen journalism from Junkfood Science
  51. Seidel subpoena a threat to citizen journalism from Kitchen Table Math
  52. Misbehaviour of Behaviorists Discussion Board
  53. Conflicts of interest disclosure from Natural Variation
  54. Flippin' heck, bloody hell, stone the crows! from Incorrect Pleasures
  55. HealthBlawg
  56. Attorney Clifford Shoemaker v. bloggers from Autism News Beat
  57. Bullying Attorney Thug from Skeptico
  58. Legal Thuggery Against Neurodiversity.com from Daylight Atheism
  59. Lawsuits and Autism: A Back-Door Effort to Suppress Facts from Odd times signitures
  60. Emotion and irrationality run amok from A life less ordinary?
  61. Implication by Association? from ASD :Commentary
  62. I am Kathleen from Stranger than you can imagine
  63. You gotta fight for your right to blog from Clotted Cognition
  64. Kathleen Seidel from Left Brain/Right Brain
  65. In Support of Kathleen Seidel And Her Work from The Joy of Autism
  66. Autism, Clifford Shoemaker, and Kathleen Seidel from Autism Street
  67. Thoughts on an absurd subpoena from Women Scientist
  68. Subpoena the Blogger from The Washington Independent
  69. Another Attack on Free Speech and a Science Blogger from Neurologica Blog
  70. What’s is all about, Clifford J. Shoemaker? from Grey Matter/White Matter
  71. In the matter of Shoemaker v. Seidel; Court of public opinion; The Hon. Bugs Bunny Presiding from Graphictruth
  72. Autism Blogger Subpoenaed from Adjunct Law Prof Blog
  73. I am also Kathleen from Stop. Think. Autism.
  74. Because someone had to do it from dkmnow