tag:blogger.com,1999:blog-28040139.post7424005869005551499..comments2023-07-25T09:25:34.293+01:00Comments on The Voyage: But that's not what I expected!Sharon McDaidhttp://www.blogger.com/profile/13550156204691696968noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-28040139.post-32947372731995660352009-04-13T00:45:00.000+01:002009-04-13T00:45:00.000+01:00Sharon, I wonder is there a day when you go from b...Sharon, I wonder is there a day when you go from being a hassled Mum to pursing your lips and tutting? I am looking forward to becoming Katherine Tates Nana and sitting with the old ladies saying "what a load of old shit!" every time someone mentions mercury or hormones.<BR/>I am interested to hear more about the mede. We have been through hell recently with Bratty not taking hers properly some days and have asked for a dose review. Its chicken and egg when they don't/won't take it. I have got the psych thinking about abilify too , love hearing what your autie readers think of their meds too.<BR/>xxLisamareehttps://www.blogger.com/profile/18445509438246694219noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-48542910030782674172009-04-10T18:26:00.000+01:002009-04-10T18:26:00.000+01:00@Chun Wong, it was a mixed clinic and most of the ...@Chun Wong, it was a mixed clinic and most of the patients were older women some of whom are a little less tolerant of what they perceive as naughty behaviour.Sharon McDaidhttps://www.blogger.com/profile/13550156204691696968noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-86594711561886565322009-04-06T10:26:00.000+01:002009-04-06T10:26:00.000+01:00Why do people have to give you those disapproving ...Why do people have to give you those disapproving looks?! I'm sure that they've been there too! Sounds like an incredibly stressful appointment, so I hope that you see some results from the meds.Chun Wonghttp://www.newautismcure.com/blognoreply@blogger.comtag:blogger.com,1999:blog-28040139.post-48995945607399135382009-04-02T09:21:00.000+01:002009-04-02T09:21:00.000+01:00Hi jazzygal, I know what you mean about seeing Dun...Hi jazzygal, I know what you mean about seeing Duncan at his best/worst. It might have been instructive for the doctors to see him struggle like that and to understand how difficult things can be for him at times. And thank you, it's better for us all now again. I'm sure we'll have plenty more up days and low days though!<BR/><BR/>@AnnC, thanks for writing about your medication. It's a big decision to make, to medicate him, but while I don't want to give him drugs unnecessarily, neither do I want to withhold drugs that could help him cope better and learn more easily. I've just picked up the prescription so will see how it goes.<BR/><BR/>@Crystal Jigsaw, waiting with any child is bad but waiting with Duncan has been on occasion, very difficult to cope with. It's usually been very easy for us at that hospital but the renovations must have thrown everything off track.Sharon McDaidhttps://www.blogger.com/profile/13550156204691696968noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-30824848579683977512009-03-29T18:48:00.000+01:002009-03-29T18:48:00.000+01:00It's quite typical I think of hospitals to keep us...It's quite typical I think of hospitals to keep us waiting but it's about time they began to understand the needs of children, let alone children with autism. I've been in this situation with Amy once or twice and have complained but it doesn't get you anywhere.<BR/><BR/>CJ xxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-28040139.post-5963411328304517782009-03-28T05:01:00.000+00:002009-03-28T05:01:00.000+00:00Eek, wow, yeah, that sounds like a terrible mess o...Eek, wow, yeah, that sounds like a terrible mess of noise and change! I would have probably reacted exactly like Duncan when I was that age. It's jarring enough when things about appointments change even now.<BR/><BR/>Also, re. medication: I've personally had a good response to low-dose stimulants; was on methylphenidate originally and take adderall xr now. So far it's the only thing I've tried that helps a bit with executive functioning/self regulation somewhat without causing other weird unpleasant effects (they tried me on Risperdal as a teenager and I reacted horribly to it).Anne Corwinhttps://www.blogger.com/profile/04940566603711834053noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-73664166638158357392009-03-27T14:41:00.000+00:002009-03-27T14:41:00.000+00:00Hi there...just dropped by.What a stressful day fo...Hi there...just dropped by.<BR/><BR/>What a stressful day for you. God i used to hate "those" looks!<BR/><BR/>At least Doc got to see Duncan at his "best"...if you know what I mean! So often u go to these appts and their like little angels.<BR/><BR/>Hope it gets better for you.jazzygalhttps://www.blogger.com/profile/04069218745940412457noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-4727171991692920802009-03-27T13:12:00.000+00:002009-03-27T13:12:00.000+00:00Hi Ann, it seems like problematic health care appo...Hi Ann, it seems like problematic health care appointments was something we had in common this week.<BR/><BR/>I've put on some weight recently from all my consolation chocolate bars! But it could be worse.<BR/><BR/>I'll be sure to make the most of my time away.Sharon McDaidhttps://www.blogger.com/profile/13550156204691696968noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-30946339074023759932009-03-27T13:07:00.000+00:002009-03-27T13:07:00.000+00:00Oh Sharon, I'm so sorry you all had to endure this...Oh Sharon, I'm so sorry you all had to endure this. It's soul destroying, I know. Hopefully it will have been worth the torture if the social care team proves to be helpful. In the meantime, have a good blow out - it always works for me!AnnBhttps://www.blogger.com/profile/13234041798702329756noreply@blogger.com