tag:blogger.com,1999:blog-28040139.post2363277705831515211..comments2023-07-25T09:25:34.293+01:00Comments on The Voyage: Do you know what it's like?Sharon McDaidhttp://www.blogger.com/profile/13550156204691696968noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-28040139.post-24854525336755725992009-09-01T20:23:04.057+01:002009-09-01T20:23:04.057+01:00Reading story on BBC News reminded me of this post...Reading story on <a href="http://news.bbc.co.uk/1/hi/health/8232633.stm" rel="nofollow">BBC News</a> reminded me of this post.<br /><br />In one way, I suppose it's good that the issues are being talked about - so no matter the attitude, more people are aware that there are issues and good reasons for expedited entry (sounds better than queue jumping!)<br /><br />I liked the closing quote:<br /><br /><i>What people need to remember is that it doesn't just make it easier for the child and their carers, it's better for everyone in that queue too.</i>Alan in Belfast (Alan Meban)https://www.blogger.com/profile/04647690758839987063noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-11080019043028578512009-07-24T23:55:01.787+01:002009-07-24T23:55:01.787+01:00The lady in the queue?? Sod her!
We've all had...The lady in the queue?? Sod her!<br />We've all had that experience, haven't we? I've had it in Supermarkets and in Mass when he was running around (actually it was limited running around cos I was actually in control).I mean, if they can't show compassion in Mass and even think to themselves MAYBE there's something wrong with that child then really...sod 'em. All of them!<br /><br />I bypass queues in theme parks and I don't give a hoot...even though we don't need it as much. However, I KNOW if I don't things will do downhill rapidly. That said, we queue when there's not a long wait cos your right FarmWife.... they need to learn..and it's a good social skills exercise. But only when the child is ready for it. My child is...yours are but some others aren't!! It is not good to judge others Farmwife.... we of all people know that!!<br /><br />Sharon, my guy just did his "social skills camp"...that's what he called it! 2 days a week for 4 weeks in July as part of our July Provision. The Resource Teachers in a local school got together and provided it. They had some helpers too. So, they're on paid hols, get paid for this, provide much need help for our kids and experience for the helpers. Win Win situation. It's a great idea...one I might push with our school. You just have to pretend the support is being provided at home....shhhh, don't tell!<br /><br />That's fantastic news Hammie!<br />xx Jazzyjazzygalhttps://www.blogger.com/profile/04069218745940412457noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-1555589339802364712009-07-22T15:13:41.635+01:002009-07-22T15:13:41.635+01:00Life is a long lesson in compromise and compassion...Life is a long lesson in compromise and compassion, some days we are good at it and some days not so good. Give yourself a break Sharon, your compassion for your child's situation far outweighed that rude mother's out of joint nose! <br /><br />Fair play to you farmwife if you have the energy to be the perfect queuing citizen. Some of us are not blessed with your level of perfection.<br /><br />Rock on Sharon!AnnBhttps://www.blogger.com/profile/13234041798702329756noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-25097142870191556132009-07-22T08:06:16.128+01:002009-07-22T08:06:16.128+01:00@Farmwifetwo, so my actions were ignorant and rude...@Farmwifetwo, so my actions were ignorant and rude in your eyes. What a shame.<br /><br /> Some days and in some situations Duncan can wait, and in others, for now, he can't. He's a runner.<br /> I assess the circumstances and based on my superior insight into my child's abilities and needs, decide how to proceed. Some times are appropriate for teaching certain skills, some aren't. I have no shame in requesting accommodations to enable us to get out and about in our community. I would rather not have my family hidden at home where we can't upset other people's fragile sensibilities.<br /><br /> @Hammie, big thumbs up for the Dundrum cinema staff! Sure isn't it far better that he gets to enjoy his films (and the amazing credits!) than that some whinge about cutting line. Duncan would tend to run off too so needs a lot of direction and sometimes when it's a matter of waiting somewhere, I have had to just hold on to him until we're finished.<br /><br /> I hope the swim camp works out, that'd be great. There's nothing here for Duncan to do. It's time I put my campaigning head on and demanded more for children like him.<br /><br /> But I enjoyed the time for just the 2 of us yesterday and we'll make our own fun together while the others are busy this summer.Sharon McDaidhttps://www.blogger.com/profile/13550156204691696968noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-84291578709020511592009-07-22T00:03:04.890+01:002009-07-22T00:03:04.890+01:00PS: Bratty and Boo did Typical School summer camp ...PS: Bratty and Boo did Typical School summer camp this year with their tutors in tow. Boo was a bit "Meh" but Bratty LOVED it.<br />I am going to send her on a typical swim camp for a week or two in August. In a semi-special needs friendly centre (where we do our special swim lessons) but with typical kids. It will be great if it works. xxLisamareehttps://www.blogger.com/profile/18445509438246694219noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-4646526514075139342009-07-22T00:00:38.115+01:002009-07-22T00:00:38.115+01:00I love Kathleen's response. Going to try that ...I love Kathleen's response. Going to try that soon.<br /><br />We do that all the time at movies at Dundrum and sometimes, rarely though, but sometimes another adult looks over and frowns as I get Boo his coke and popcorn. But I have given up karate kicking them in the head and instead just concentrate on prompting Boo to stand still and not go for sprints, not take the top off the peanut machine, not put his hands on the Bruno poster's bum and not keep trying to undo the queuing guide tape things that ping back if you unclip them.<br /><br />They get the idea.<br /><br />xx<br /><br />(The staff at Movies Dundrum are unFAILINGLY helpful, and they always remember to say Hi to Boo and wait for him to look at them)Lisamareehttps://www.blogger.com/profile/18445509438246694219noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-79364112377123888562009-07-21T23:45:17.367+01:002009-07-21T23:45:17.367+01:00We never push our way to the front of the line. NE...We never push our way to the front of the line. NEVER. I find it ignorant and rude. Yes, we've had our moments in line and yes when I've told the people around me about the autism a lot of the time they offer to let us go first.<br /><br />But I say thank you and refuse their offer. They appreciate what we are doing when they realize it's a lesson in social and behavioural skills and are usually very polite once they understand.<br /><br />It's not polite. Yes, the behaviour may be caused by the autism but autism is not an excuse to behave badly.<br /><br />At 7 and 9 we have learnt this lesson and although it may not always be perfect, they wait.<br /><br />Including when we go to Marineland in Niagara Falls in a few weeks. We will not be buying any disability passes to push our way to the front of the lines. We'll wait our turn like everyone else.farmwifetwohttps://www.blogger.com/profile/02680758336779501712noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-46697541655244358402009-07-21T15:56:45.285+01:002009-07-21T15:56:45.285+01:00Hi bullet. If I hadn't written tat post as soo...Hi bullet. If I hadn't written tat post as soon as I'd come home I'd have forgotten about her by now.<br /><br />I hope Thomas enjoys his playscheme. There is nothing around these parts that I can find for disabled children. But I'm meeting a woman from the children's disability social team on Thursday so perhaps something will turn up.<br /><br />@Kathleen, fantastic! Perhaps I'll try to channel your New York style next time!<br /><br />I laughed when you pointed out the word "scheme" as I'd never considered it before. All very cloaks and daggers really!Sharon McDaidhttps://www.blogger.com/profile/13550156204691696968noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-72263610353306676522009-07-21T13:57:05.073+01:002009-07-21T13:57:05.073+01:00I have been in similar situations..What I have ten...I have been in similar situations..What I have tended to do (this is probably the N.Y.er in me) when I hear muttering-is turn grin widely and say "It is because I am queen of the universe..didn't you know?" and walk on. If they haven't noticed that I have my hands a bit full..well then, they are not going to pay attention as to why they are full.<br /> I love that it is called a "scheme" it sounds so intriguing!kathleenhttps://www.blogger.com/profile/07648854807234137885noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-87167969757406536652009-07-21T11:11:04.263+01:002009-07-21T11:11:04.263+01:00It's a pity the woman wasn't more understa...It's a pity the woman wasn't more understanding. I hope Lady and Thomas enjoy their scheme. Tom has started at his first holiday playscheme today. It's one for children with disabilities. Two days a week over four weeks. One of the teaching assistants in his school was there when we walked in.<br /> "Hello Tom" she says to him.<br /> "You got your name written on" he tells her. <br />I left him walking into the main playscheme area without a backwards glance on him. I think he'll be ok.bulletnoreply@blogger.com