tag:blogger.com,1999:blog-28040139.post6118216773384011663..comments2023-07-25T09:25:34.293+01:00Comments on The Voyage: P2P Autism in Northern IrelandSharon McDaidhttp://www.blogger.com/profile/13550156204691696968noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-28040139.post-8003844180106048422007-09-28T08:54:00.000+01:002007-09-28T08:54:00.000+01:00Sharon, If you listen to what Karen Buchanan has ...Sharon, If you listen to what Karen Buchanan has to say, your child could benefit. When it comes to autism, she is probably the most knowledgeable person in Northern Ireland.John Besthttps://www.blogger.com/profile/03133970669787632440noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-29282002679700148852007-09-27T22:34:00.000+01:002007-09-27T22:34:00.000+01:00Just for the record, my own position is moderate. ...Just for the record, my own position is moderate. I have seen neurologists, immunologists, pharmacologists, pathologists in the treatment of my gut, immune and metabolic disorders which showed signs since I was 6 mths old (was dx'd as a psychotic infant at 2 years old in 1965, tested for deafness into late childhood and formally dx'd as autistic in the 90s). <BR/><BR/>I am VERY AWARE that the PUB MED info is that 20% of children diagnosed with autism have primary immune deficieincy - ie see the Gupta studies (hence 80% do not) and that 20 year studies - Rosemary Waring - have found 60% are salicylate intolerant (therefore 40% not) and 80% can't digest casein and gluten - Paul Shattock (so 20% can). <BR/><BR/>I happen to be someone whose language processing was helped significantly by biomed interventions at age 9 (zinc, C, multivitamin-minerals) and jumped from 10% to 50% - enough to eventually develop functional speech (previously fitting Semantic Pragmatic Language Disorder) then up to 70% with the use of Glutamine in my 30s. I'm also very aware of the use of omega 3s in ADHD and Childhood bipolar (also in Pub Med) which are co-morbid conditions which can complicate SOME children's autism. <BR/><BR/>I do not support extremist chelation programs but as the SENSIBLE use of minerals in the management of gut, immune and metabolic disorders is low key chelation, I am on that and have been for decades. <BR/><BR/>I have talked for groups on both sides of the culture-cure divide and will speak for any group I agree or disagree with if my information will help their audiences. <BR/><BR/>As an autism consultant with over 12 years experience I'm VERY aware that biomed is NOT the answer for all people on the spectrum and that done in the extreme, long term and with no qualified medical supervision can be dangerous. As a consultant the approaches and strategies I suggest are environmental and biomed is only suggested if the family feel there are clear indicators that physiological disorders may be present and potentially contributing to neurological issues as PART of their child's autism. <BR/><BR/>I hope this clarifies that in a black and white world, I live firmly in the grey.<BR/><BR/>As for GPs, many are great and have certainly helped me, but mostly they've helped with referrals to specialists. I do hear, however, of some GPs who don't help parents get referrals and fob off health issues as 'part of the autism' whilst being closed minded as to whether treatment of these things may reduce one's degree of autism. My personal experience is that GPs have been good about referring me to specialists when there are physiological issues they haven't been able to manage. Perhaps I'm lucky.<BR/><BR/>... Donna Williams *)Unknownhttps://www.blogger.com/profile/14245803671535965188noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-77765881870048245632007-09-27T00:08:00.000+01:002007-09-27T00:08:00.000+01:00Whew, I thought your last installment was damning....Whew, I thought your last installment was damning. This one (Karen Buchanan) absolutely reeks, in my opinion.<BR/><BR/>"Wing's now passé..." Oh, these folks think they have done something better than Lorna at least bringing it to light in the English Language?<BR/><BR/>Karen obviously hasn't been following Canada's struggle since she left (for what reson?, to get Choice in treatments?) and I think Michelle would tend to disagree that they have been celebrating the individual, at least for the Autistic folks.<BR/><BR/>I better quit thinking about this, I think Orac would agree.... The Stupid.... It Hurts!Patrickhttps://www.blogger.com/profile/04747506313119140677noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-69645544603432239182007-09-26T20:35:00.000+01:002007-09-26T20:35:00.000+01:00Exactly Bullet! I don't know why these issues have...Exactly Bullet! I don't know why these issues have been linked to autism so much.Sharon McDaidhttps://www.blogger.com/profile/13550156204691696968noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-13615670256682027022007-09-26T20:30:00.000+01:002007-09-26T20:30:00.000+01:00Issues like eczema and diarrhoea should be treated...Issues like eczema and diarrhoea should be treated separately and the appropriate treatment given. I know that diarrhoea in very young children, whether on or off the spectrum is very common and is actually referred to as toddler diarrhoea. Obviously older children can get diarrhoea as well and again appropriate treatment should be taken. But it won't determine whether a person is on the autistic spectrum or not, all it will do is ensure a child does not have diarrhoea.Anonymousnoreply@blogger.com