tag:blogger.com,1999:blog-28040139.post2952015993724717404..comments2023-07-25T09:25:34.293+01:00Comments on The Voyage: Somethings help, some not so much.Sharon McDaidhttp://www.blogger.com/profile/13550156204691696968noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-28040139.post-84080226289248869682008-03-11T00:17:00.000+00:002008-03-11T00:17:00.000+00:00Great post. I think my "favorite" of the dumb com...Great post. I think my "favorite" of the dumb comments I've received was:<BR/><BR/>"So, then, will she ever outgrow <I>it</I>?"S.L.https://www.blogger.com/profile/07862458535714883672noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-85245366019673231422008-03-10T12:20:00.000+00:002008-03-10T12:20:00.000+00:00Thanks for all the stories. I think that we share ...Thanks for all the stories. I think that we share much in our experiences as parents of autistic children, trying our best to get along.<BR/><BR/>There's one good phrase someone once told me, but I haven't yet had the opportunity to use it. On receiving unsolicited "advice" from a stranger, you can say, "Oh wow, I didn't know I was going to run into a world famous autism expert today, do you have a card? I'd really like to discuss these issues with you further when my hands aren't so full looking after my children, etc..."Sharon McDaidhttps://www.blogger.com/profile/13550156204691696968noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-20155746684127887812008-03-08T23:51:00.000+00:002008-03-08T23:51:00.000+00:00We "knew" beofer we ever got a diagnosis. In fact...We "knew" beofer we ever got a diagnosis. In fact, we had to fight for one. The most helpful thing I've heard is "keep living your life and don't act like he's any different than other kids." LEAST helpful? "Do **they** think he'll ever be normal?"Niksmomhttps://www.blogger.com/profile/14715465327343655483noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-74851038056957271312008-03-08T20:08:00.000+00:002008-03-08T20:08:00.000+00:00An insensitive friend saying: "I" could never do i...An insensitive friend saying: "I" could never do it! (parent a child with a disability)<BR/>sheesh! what would she do...give her child away?<BR/><BR/>Helpful and crusty old neighbor: "Ah, he'll get along just fine."Jodihttps://www.blogger.com/profile/11339130503678210769noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-53058244925260217842008-03-07T09:45:00.000+00:002008-03-07T09:45:00.000+00:00Oh gosh! There were too many to remember! And it w...Oh gosh! There were too many to remember! And it was a long time ago now. We still get insensitive remarks, but i cope with them much better now.Casdokhttps://www.blogger.com/profile/03497897393162856190noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-14181890917018380652008-03-06T17:38:00.000+00:002008-03-06T17:38:00.000+00:00my "favourite" insensitive remark came from the mo...my "favourite" insensitive remark came from the mother of another autistic when she realized I was pregnant - "aren't you terrified of having another autistic child?" She didn't realize that I already had one younger than Alex (an Aspie as it turned out) nor did she realize, or even understand that "no", I wasn't at all terrified.jypsyhttps://www.blogger.com/profile/01105669108222678038noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-51157942783011010452008-03-06T17:30:00.000+00:002008-03-06T17:30:00.000+00:00Sharon, my son was diagnosed in the Summer of 2006...Sharon, my son was diagnosed in the Summer of 2006, when, thank goodness, the Hub already existed! The day I realized my son was autistic, I went to a bookstore and bought "Engaging Autism" by Dr. Greenspan. I learnt by reading the book that sometimes autistic children improve very much, and I thought my son could be one of them. Then I happened to have a coworker whose wife is a major expert in autism. She saw my son and thought he was quite high functioning and would probably have a good prognosis. So by the time he got his official diagnosis, just short of turning 3 years old, I had already read dozens of books where autistic toddlers grew up to become fully verbal and mainstreamed... In one of the books the child, who is now a brilliant teenager, only started to talk in sentences when he was about 7 years old. So I've been hanging on to that hope. My son is somewhat verbal and has great pronunciation, but he's still hugely delayed. On the bright side, he's hyperlexic (advanced reader), very affectionate, has very few sensory issues, and is able to take turns and have playdates.Another Autism Momhttps://www.blogger.com/profile/15068526422102642426noreply@blogger.com