tag:blogger.com,1999:blog-28040139.post2928426093758967428..comments2023-07-25T09:25:34.293+01:00Comments on The Voyage: Autism Biomed Bullshit Booming in IrelandSharon McDaidhttp://www.blogger.com/profile/13550156204691696968noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-28040139.post-26272296571550090652014-03-25T11:14:09.736+00:002014-03-25T11:14:09.736+00:00Hi yes sharon , this iarb.ie it is development wi...Hi yes sharon , this iarb.ie it is development with partnership of nuig, trinity college dublin and Autism Speaks. I was at this meeting and raised my concerns of this biobank / registry especially because of autism speaks involvement. I now know that autism speaks are involved in ireland since 2012 with their "ireland fund" project funded by them and Adrian Jones board member of Autism speaks is one who initiated it. I am shocked that any college or person that really cares for Autistic people would engage with Autism speaks as they clearly discriminate and demonise those with Autism. I'm mother to 2 Autistic children and have aspergers. I find it very worrying that they are continuing on with this project even though they are fully aware of how much hurt they are causing the autistic community by allowing autism speaks into ireland In the first place. I believe in research to support autistic people but not to eliminate them which is What autism speaks clearly believe! We won't ignore this though and a boycott is in the making as we speak , yes let the real AUTISTIC people SPEAK !!Anonymoushttps://www.blogger.com/profile/11397442988042260187noreply@blogger.comtag:blogger.com,1999:blog-28040139.post-13633093226413974682014-03-25T09:47:29.745+00:002014-03-25T09:47:29.745+00:00Hi there, thanks for your articly. I agree that un...Hi there, thanks for your articly. I agree that unbalanced media reports are really unhelpful. Please see our website www.iarb.ie for information on initiatives regarding progressing real science in ASD. RTE reported on this on their morning news show on 16/01/14. Its unfortunate that the more controversial topics tend to drown out the science.<br /><br />Best Wishes<br /><br />Louise GallagherMax6700https://www.blogger.com/profile/06943367671347034921noreply@blogger.com